Saturday, September 11, 2010

Playing the Waiting Game


It's been awhile since we've updated this blog....not because we've given up, but more because we are in limbo right now. If you've been in town, you've seen that Corey is home and among friends and family. Living his life and having a good time. In my personal opinion, this is the best medicine for him right now.

In the time that he's been home, his spirits have been lifted and I've seen a general overall sense of calm and happiness come over him. When facing such an extreme surgery and life changing event, a good state of mind is most important. I am thankful everyday that his surgery didn't happen in Michigan. They say that everything happens for a reason, and I am positive that someone 'upstairs' worked some magic to make sure that he was home near a strong support network during this time. Have faith in whatever you have faith in.....someone is lookin' out for ya!

So right now, we have the disability papers submitted and now we are just waiting on the approval. This could take anywhere from 2 months to 2 years, but in his case, he should have no trouble getting approved. Most people get approved for disability when their lung function is at 40%.

His is at 25%.

This means that he only has half of a working lung.

To look at him, you'd never know.

(However, I have to try hard not to be so hilarious around him because when he laughs really hard he goes into an all out asthma attack...and it scares me to death...note to self: stop being hilarous around little brother)

Once this disability is approved, and he gets some stable insurance (he has none right now), we will proceed with additional testing and get a second opinion from his Cincinnati Dr's. With his lung function where it's at right now, they are thinking more along the lines of a Double Lung Transplant, BUT.......this is a HUGE life changing event.....and will take a lot of support from all of his friends and family once it's done. We're ready though. We're ready. In order for us to make that decision, more expansive and EXPENSIVE testing needs to be done....and that's where the waiting game comes in........gotta wait for the approval on disability and medicare/medicaid...it's all so confusing right now.

At some point, I may end up throwing a rocking fundraiser party...who knows.

My brother is one of the toughest people I know. He's not all sunshine and rainbows to be around, but that's just him.....and hey! that's what I'm for, right? He teaches me to be an asshole, and I teach him to count to 10 and smile. It's a good balance. :) But together, with the support of our family and friends, we are gonna get through this thing.

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